Maureen Smith
My commitment and passion for patient engagement and patient partnered research stems from a diagnosis with a rare disease during childhood and frequent flyer status with the healthcare system. I have benefitted both from participating in pediatric and adult clinical trials and collaborating with trialists as a patient partner. I'm especially interested in advancing youth and family engagement in areas of research where it is in its early stages, such as reporting guidelines. I'm proud to say that I've collaborated with research teams and patient groups to advise on co-developing 6 pediatric core outcome sets. In June 2023 I was appointed Adjunct Professor at the University of Toronto Dalla Lana School of Public Health, a recognition of the expertise I have acquired in patient engagement as a person with lived experience. I may pop up on Zoom calls in unexpected places as my husband and I explore Canada in our trailer!
Research Discipline: Patient Engagement